Huntington’s Disease True Colors


This is a video I made in remembrance of my mother shortly after she passed away from Huntingtons Disease. The video footage was shot 2 weeks before she died. When we were going to the nursing home, for some reason I felt this urge to bring my video camera and record her with my son. The photos and video in this video show my mother throughout the years, from a child to and adult ravaged with Huntington’s. The photos show how this disease ravages a persons body. Let’s all hope for a cure in our lifetime!

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25 Responses to “Huntington’s Disease True Colors”

  1. kiwi1582 says:

    Thank you so much for this. I am struggling to write what im feeling at the moment. Im 18 years old and my mother has huntingtons disease. I love my mother so much and it just kills me inside to see what shes going through. Iv’e

  2. FieldOfGothness says:

    All THE HEALTHY ONES SHOULD BE THANKFUL! ALL YOU GUYS THAT SUFFER FROM THIS DISEASE BE STRONG! THE ONES THAT DIDN’T MAKE IT REST IN PEACE FINALLY :’( !!!

  3. FieldOfGothness says:

    good

  4. klsjafksjdfklsdfjkls says:

    If I knew there was a 50/50 chance of me having Huntington’s.. I wouldn’t be able to take it. Sorry for your loss.. glad to hear you’ve tested negative :D

  5. Lisetjeeh says:

    im so sorry for your loss. your video is really beautifull and i got tears in my eyes watching it. my stepdad has HD and he is what they call it in the last fase. not being able to eat by himself anymore. i know what you have been through and it is really heartbreaking! that urge to make a video/pictures, iv been having that lately to, and i guess i should listen to it and enjoy the time we still have. thank you so much for posting this! may there be a cure soon.

  6. lolila1625 says:

    i just wrote a paper on huntington’s and believe me, ur video was very inspiring… i have no words to express the sadness of the disease.. i just pray for a cure to be found soon as more people are being diagnosed with this nasty disease.. you were very brave to put up this video, ur mother will always be proud of you!!! thanks for sharing it and god bless you…

  7. mirandajulia24 says:

    I’m so so sorry for your loss. Your mother looks like she was a truly beautiful person…

  8. MrTheColombiano says:

    soi colombiano en mi pais sta enfermedad dicen que es como una dinastia de el apellida echeveri propiamente la gente que tiene sta enfermedad son de un pueblo de la costa y todos son familia de generaciones de tantos anos

  9. steviefreak69 says:

    @gumbyh20 beautiful video of your husband. I wish and pray for the best for the 2 of you on this journey. It’s a daunting road to travel down. Keep positive.

  10. steviefreak69 says:

    @clickofdeath I was tested several years ago. Luckily I do not have the disease, but still it was a hard personal choice to be tested.

  11. gumbyh20 says:

    I am so sorry. My husband, who is now 30, was diagnosed with huntington’s 3 years ago.His mother passed from HD in 1996.

  12. clickofdeath says:

    Have you ever thought about getting tested for it?

  13. madeyes4u says:

    I’m sorry for your loss. No words will ever be able to sooth you, but just know that after death their is another life. Death is not the end of the road, it’s just the beginning of another one.

    Peace and love.

  14. MsBug53 says:

    Your video brought more tears to my eyes as my family and I are making the descion to put our 34 year old foster daughter in a nursming home. She has been a bright star in our lives, but we can no longer handle the emotional & physcial demands. We are keeping her 11 year old daughter as there is no other family involvement. They said it was too hard too watch. Someday there will be a cure. We are all praying for it. Thank your for sharing. Dawn

  15. tusharip says:

    You have made a very lovely and lovin video about your mother who was a beautiful women struck by a bad genetic illness.
    I wish you a lot of strength, thank you for making this video.

  16. MentalMindFork says:

    Wow, such a sad video. I’m so sorry! I’m studying a bit about HD at university and I just wanted to see what it looks like and I had no idea! Such a beautiful video

  17. steviefreak69 says:

    @ejc0616 so sorry for your loss. HD is a horrible disease to watch our loved ones suffer through. Your bringing more awareness to it can only help the cause. I personally know how little people know of this disease…I myself had no clue to what it was or the devastation it could bring when learning of my mothers diagnosis. People would say to me “what’s the big deal? We could all die tomorrow.” not knowing a thing about horrible it truly is. I wish the best for you and your family.

  18. ejc0616 says:

    More people need to undersand what HD is, I am raising money for the Huntingtons disease assosiation at the moment and nearly every person who gave money has asked me “what is it?” I will ask them to watch this video, I have lost both my mum and my Brother to HD.

  19. werfisha says:

    very sad

  20. steviefreak69 says:

    @keeleyfleming88 I pray the good lord has skipped you as well and gives you the strength to make it through no matter what. My mother was the first that we know of that had it, although many people on her side of the family died young. It’s tough watching our loved ones go through this, but, being there for them helps so much. My thoughts and prayers are with you as well…best of luck!

  21. unicrazyperson says:

    Sometimes I forget that my grandma died this passed November and then it dawn on me that I’ll never again feel her embrace. I’m so sorry about your mother and I hope someday there will be a cure for HD.

  22. peaceisloveforus says:

    thanks you. You made my day. I turn away when i get hose rude comments. This morning we took my dad Ice fishing (his favorite thing to do) everyone laughed at him. they were saying he was stupid, a retard. I was like yah thats my dad, I love him NO MATTER WHAT! My dad caught a fish he calls the Hannah Fish, the 1st fish i ever caught while ice fishing! Hes my dad eaither way I love him, for ever and ever! When hes gone im going ot fight! fight till we find a cure! HD is always on my mind!

  23. steviefreak69 says:

    I’m hoping that you find the strength to get through this no matter the out come. I hope you don’t have HD and wish the best for you. I understand how you feel about going in public with your dad. People would always stare and snicker at my mother too. One lady even asked if she was retarded…I said “No. But you are for asking such a question!” I learned to ignore the stares and the comments. People are always curious about what they don’t know. God bless and Good luck.

  24. peaceisloveforus says:

    Thats great that you dont have it. I am 13 and may have it. They think i am showing symptoms od HD! My father is on a medican but it does not help. Its sad. going in piblic with him is a battle. He is laughed at. People take this disease the wrong way. I love this video. I play it all the time. Makes me cry. I hope they find a cure.

  25. steviefreak69 says:

    @peaceisloveforus My thoughts and prayers go out to you and your family. Yes, I have been tested. I’m one of the lucky ones that has escaped this killer. Maybe one day in our lifetime there will either be a cure or at least medicine that cand truly help the symptoms.

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